Today we have over 23000 families waiting assistance/support for their kids. Another 8000 families currently receive some form of support. New changes to OAP will put money in the hands of all families and make the support payout purely based on age of the child instead of level of support needed. One thing is clear - the support dollars are not going to meet all needs of our children - based on the current costs - most of us will have to spend out of hand.
The changes to the OAP have frustrated all the families who were receiving funding. The lack of need based assessment will leave a majority of families helpless as the cost for each of the services are different for each child and many (or most) families will be left to pay out of pocket to continue service at same level.
The (forever) waitlisted families are split over the changes - some happy that finally they are going to see some funding come in and some are worried looking at the plight of the current families who are protesting lack of funding. They are thinking about if it would have been better to have waited and got full support instead of a small funding in hand right now.
What I believe is being missed out is the outright privatization of the autism services market.
The autism services market has been pretty much a govt funded market. The central intakes and all related services receive funds from the government. The private services are expensive offshoots targeting the high income families.
With the new changes the money now rests with the families. All existing services are now figuring out how to deal with the change in dynamics where each family is going to be the customer rather than a lottery winner and demand more and try to stretch their dollars. There will be staff layoffs at these service centers and new private businesses will sprout up to attract these family dollars - mostly staffed by those laid off.
These new businesses will offer lower costs than the existing organizations. Initially lower operation costs would be at the cost of quality of services and staff. They will compete with the existing service providers - who will have significantly higher costs because of their inherent high cost of operation and high paid staff.
Every family will have to choose between the high quality and expensive services and cheaper privatized offering. Eventually the supply/demand forces will act. The quality and cost of privatized services will improve and the services will be available at the price tags affordable for families within their funding limits.
All this will play over the next few years and along with the families, one of the most impacted would be the therapists and other support staff who will have to fit into a more challenging and cash strapped market place.